After several years remission, the pain is back. Just like the old days. This artwork, done by a sufferer of TN, is a pretty good representation of what the pain is like for me:
My pain is on the right side only, and mainly affects the lower jaw, upper teeth - occasionally the side of my nose. My lower jaw has been taking a beating with pain over the last week. At its worst, it feels like someone is taking my jaw bone and breaking it in half, while at the same time ripping out every tooth. Lightning bolt pain doesn't even begin to describe it. Sometimes my right ear feels like it's on fire.
The pains have been lasting several minutes up to one half hour and then, poof! - it disappears completely. I never know when it will return and that is a part of the hell of this affliction. The fear of the pain is a factor even when you're not experiencing any pain. When the pain is minimal, the fear of the pain becoming more intense will really screw with you.
I have an appointment to see my Neurologist after the Christmas break. My medication doesn't seem to be helping very much. Wrapping my head in a scarf to cover the right side of my face helps a little. Seven times out of ten, if my nose is completely covered by the scarf the pain will magically disappear. I look ridiculous though, and explaining it can feel awkward.
Wind, even the slightest breeze, triggers pain. Chewing will sometimes bring pain on and sometimes relieve it. Brushing my teeth or washing my face has no effect.
For more Trigeminal Pain artwork click here. It is a hellish affliction.
Here are a couple of links for support:
Living with TN.
FPA support. (Formerly TNA)